{"id":18,"date":"2020-04-27T15:43:22","date_gmt":"2020-04-27T15:43:22","guid":{"rendered":"https:\/\/vbd.casn.ca\/?page_id=18"},"modified":"2021-05-12T14:07:07","modified_gmt":"2021-05-12T14:07:07","slug":"living-with-climate-driven-vector-borne-disease","status":"publish","type":"page","link":"https:\/\/vbd.casn.ca\/index.php\/resources\/living-with-climate-driven-vector-borne-disease\/","title":{"rendered":"Living with Climate-Driven Vector-Borne Disease"},"content":{"rendered":"

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\"\"\u201cThe voice and experience of those who suffer must be amplified, respected, welcomed and valued and as a result, nurses have a unique and important opportunity to advocate on behalf of their patients, challenging the status quo which continues to contribute to harm, misdiagnosis and suffering\u201d<\/p>\n

Sue Faber RN, BScN, Co-Founder and President LymeHope<\/p>\n<\/blockquote>\n<\/div><\/div><\/div><\/div><\/div>

The views expressed in the external content linked below do not necessarily represent the views of the Canadian Association of Schools of Nursing (CASN) or the Public Health Agency of Canada (PHAC).<\/span><\/p>\n

The \u201cLiving with Vector-borne Disease\u201d webpage was created to highlight the lived-experience of individuals, families and communities affected by climate driven vector borne infectious disease. It reflects a key learning developed during the course of this project: the need for health care providers to develop a deeper understanding of the meaning that VBDs have for the people experiencing them, as well as the importance of recognizing their strengths and the unique challenges they are facing.<\/span><\/p>\n

This section underscores the critical importance of patient advocacy in shaping policy, programs and practices addressing vector-borne infectious disease. Over the last few decades, patients have been calling for a greater role in the development and delivery of programs, interventions, and services designed to meet their needs. \u201cNothing about us, without us\u201d, an expression popularized by the Canadian HIV\/AIDS Legal Network (2005), has punctuated this movement, and highlighted the need for a fundamental shift in patients\u2019 relationships with the health care system. <\/span><\/p>\n

Recognizing this movement, CASN acknowledges the tremendous value of respecting and learning from patient experiences. We extend a special thanks to the multiple stakeholders with lived experience of climate driven VBD across Canada who contributed to the development of this resource and to <\/span>CASN\u2019s Guidelines for Undergraduate Nursing Education on Climate-Driven Vector-Borne Disease<\/i><\/b> . We are particularly grateful for the time, expertise, and insights they provided us with throughout the project. <\/span>CASN honours and acknowledges the voices, experiences and contributions of patients and their advocates.<\/span><\/p>\n

Lyme Disease patient testimonies<\/b><\/h3>\n

Canadian examples:<\/b><\/h4>\n